Learning Objectives
By the end of this episode, NICU Grads will be able to:
1. Discuss what it means to be a parent of child diagnosed with HIE 2. Learn how to support families affected by HIE in and outside the NICU
Guest Speaker
Betsy Pilon
NICU mother to a son diagnosed with HIE & Executive Director of Hope for HIE, a global nonprofit dedicated to improving the quality of life for children and families impacted by HIE through awareness, education and support for neonatal and pediatric acquired hypoxic ischemic encephalopathy.
Twitter- @hopeforhie
Website: https://www.hopeforhie.org
Listen on the pod as Betsy Pilon, Executive Director of Hope for HIE, shares her NICU experience as a parent of a child diagnosed with HIE, highlighting the importance of parent-physician communication, peer-to-peer connections & life long support outside of the NICU. Specifically, Betsy highlights typical struggles NICU parents experience when they have a child impacted by HIE and provides advice on how, we, NICU providers can better understand and help our current and future NICU families.
Credits
- Written and Produced by: Neena Jube-Desai MD, MBA FAAP
- Cover Art by: Neena Jube-Desai MD, MBA FAAP
- Host: Neena Jube-Desai MD, MBA FAAP
- Editor: Neena Jube-Desai MD, MBA FAAP
- Guests: Betsy Pilon